Friday, October 3, 2014

how we're going

I have started and abandoned this post a few times now. I want to let you know how we are going - those of you who don't already know - but such a huge amount has happened since I wrote about Steve's diagnosis and surgery that it defies fitting into a blog post!

Here it is in miniature:

- 10 weeks ago my husband Steve was diagnosed with adenocarcinoma of the third and fourth sections of the duodenum (at the top end of the small bowel) after half a year of strange symptoms; it caused a blockage and he became unable to keep down solid food.

The tumour was removed successfully, for which we praise God (the surgeons were surprised at the success of the surgery). It was a stage 3 tumour - it had already spread to the lymph nodes - but there were no visible secondaries or spread to local organs, and the margins were clear.

- Steve spent a very long 5 1/2 weeks in hospital, and I spent much of that time with him while Mum cared for our 4 children at home.

They were strange weeks of shuffling walks down hospital corridors, wheeling him to a sunny courtyard every day (all the doctors say, "Sit in the sun while you recover from surgery"), sitting by Steve's bed while he suffered silently, getting him wet facecloths or blankets, reading the Bible to him and praying, or writing and looking out the window.

Hard days of diagnosis and grief, fear and surgery, tears and nausea; a terrible day when he had a septic shower (due to an infected haematoma) and I thought I would lose him; days of discouragement and slow, slow recovery.

- We have been home for 4 1/2 weeks now. You look forward to escaping hospital, so it's a bit of a shock to discover you have brought all the difficulties home with you. Of course, you knew this would happen, but it's hard all the same.

That said, it is wonderful for Steve to be home and for us to have him home. It has been slow, but his digestive system is gradually recovering from surgery. He can eat a little more, and we are learning to manage the issues caused by whipple-style digestive re-plumbing (for those in the know, he still has his pancreas and stomach, which makes it easier).

- He started chemotherapy - to mop up the remaining cancer cells in his system - 2 weeks ago. He had his second treatment this morning and it went fine. The treatments are in a beautiful new oncology room with a wall of windows looking out into the canopy of a huge oak tree.

He will have 12 treatments, God willing, every 2 weeks for 6 months. Already there have been unpleasant side effects, and they will increase over time. And so the next 6 months are going to be challenging.

The chemo will be followed by scans to check if the cancer has gone. I guess that will be a whole new stage of waiting, praying, hoping and trusting. We are planning a family holiday for after chemo if Steve is well enough.

- Many, many things have changed. Steve lost work, ministry and health. I lost ministry and have taken on the role of a carer to Steve as well as to our chronically ill son. We are at a different church now, just down the street from our house: our old church is too far to travel at the moment.

There is a lot of trauma and grief to process. My health hasn't been good due, I guess, to the stress, but I am beginning to recover. Our kids are doing okay and processing what has happened in their own ways.

It is the most beautiful Spring here in Melbourne. I go for walks and rejoice to see the new leaves of oaks and elms opening against the sky; sit by the lake nearby and listen to music or cry and pray.

We are learning a lot about endurance and persevering in faith, about turning and looking to Jesus, about trusting the Father's plans for our lives and seeking to glorify him. I love and live in the psalms more than ever (psalms 61-63 are my new favourites).

Steve and I are reading John Piper's tiny booklet Don't Waste Your Cancer together in the evenings. At one or two paragraphs a day, it's just about the right length! It's been very helpful and challenging.

We are upheld by many people's prayers, practical support and encouragement. If you have been praying, thank you so much!

And thanks too to our great God who loved us enough to give up his only Son to die for us, who understands suffering from the inside out, and whose love never fails.

For regular updates you can "like" this page on Facebook: Pray for Steve.

7 comments:

Deb said...

Praying, praying, praying. XOXO

Michael Santos said...

wow... i am so encouraged by you and steve and your family. May God bless you and keep using this to glorify Him.... my prayers are with you guys! miss you lots
-santos

Emma P said...

Beautifully written as always Jean

Anonymous said...

BHi Jean. I have been passed on this link by a dear friend. I am driven to pray for you al,as I know something of your journey. In June I lost my wife to an aggressive ovarian cancer. She battled faithfully and with her eyes fixed firmly in Jesus for three and a half years. I know something if the symptoms Steve is battling with as her journey was one of surgery and then chemo. God did not rob is of a beautiful soul, he took her home for his own reasons. We ( son 17 and daughter 19) are inspired to 'live like that' captivate by the love of an inspiring woman. Grace and peace to you as you battle with Steve. Tim.

Jean said...

Thank you for sharing Tim and I am so sorry to hear about your wife, but also rejoicing to hear of her faith and of your trust in God and how she encouraged you and your two children. God be with you all - as he is! - and may you keep trusting in him as you grieve.

Sarah said...

Praying for Steve and all of your family. xo

Anonymous said...

Praying for you all :)
Helen