Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Thursday, September 29, 2016

The hero of my story

We begin by thinking we are the authors and heroes of our stories. We give ourselves a starring role. We start with plans, aspirations and expectations: studies, marriage, children, career. Perhaps our dreams have the appearance of selflessness: ministry, mission, service. But still we are the heroes, preferably sung rather than unsung. Our families flourish. Our ministries are fruitful. Our plans succeed.

And then they don’t. Earlier this year, I was at the hospital – again – with my chronically ill son. We walked past the room where my husband had chemotherapy two years ago. Sometimes I wonder if I imagined that chemotherapy has a smell, and then I walk down that corridor and realise, nope, it wasn’t just in my mind. It’s a chemical smell that sticks to the back of your throat and lingers in your nasal passages. One sniff, and I was swallowed up by memories: weeks of sitting by Steve’s hospital bed, and months of watching him endure chemotherapy. We’re now in that nervous waiting stage where we don’t know whether the cancer will return. In a few weeks, we’ll get the results of another scan. You learn not to dwell on it; but the awareness is always there, like something flickering at the edge of your sight. This has become my story; a very different story from the one I would have written for myself.

Life refuses to shape itself to the neat narratives we write for it. When you’re young, you lay your plans: you’ll study this course, get that job, marry, have this many kids, do these ministries. At some point you realise life isn’t turning out the way you thought it would. Sometimes, as in my case, this might be because life takes an unexpected turn – our son’s chronic ill health, my husband’s cancer – but often it’s simply because we’ve reached a certain age and our hopes haven’t been realised (aka: the midlife crisis). This can lead to grief and fear. But it’s also an opportunity to learn something we should have known already: that we’re not the author of our stories; God is. He is the one who ordains every one of our days (Psalm 139:16 cf. Prov 16:9).

God is the author of my story. And he’s a far better author than I could ever be. I wouldn’t have written so much hardship into the recent pages of our life. But as I look back, I’m surprised to realise that, in some ways, the suffering is the part I’m most grateful for. It’s helped me see just how weak I am, and driven me to rely on God’s strength. It’s chased me into his arms, and deepened my knowledge of him. It compels me to set my hope on eternity rather than this life, and moves me to comfort others with the comfort I’ve received (2 Cor 1:3-7). I don’t fear the future like I used to, because God has been with me in the darkest times. I have tested him, and he has proved true. His faithfulness seems tangible to me now, solid rock under my feet. My faith is more stable, my joy more intense, and Jesus more precious. No one would ask for it – the grief, pain and fear – but in God’s mercy I have gained more than I have lost.

Of course, this perspective is only possible at one of those pauses in the story when you stop and reflect on what is past. On the darker pages that perspective is lost. There was one morning – I don’t like to remember it – when I woke out of a deep sleep to gut-wrenching tears and faced fully, perhaps for the first time, what all this might mean: my husband gone and four children to bring up on my own. On that day going on seemed too hard, because I don’t want to live this story – who would? Yet I know that, however dark these pages – however hard it is to see now – the day will come when I will see and understand. For the author of this story is a master story-teller, and no sentence is wasted. He crafts every paragraph with care and precision. I may be bruised and battered and broken – sometimes I wonder if I will make it at all – but he turns my weakness into strength and my brokenness into blessing. This story may pass through darkness, yet in his hands, I know it will end in joy.

Better than that, this author hasn’t stayed outside the story, an omniscient, removed narrator; he has become a character on its pages. He knows what it is to cry out in the dark, and he is the one who overcomes the darkness. For in the end, this isn’t my story at all. Not only am I not the author of my story, I’m not the hero either. My part in this narrative serves to do one thing: highlight and direct attention to Jesus. He is the hero of this story, not me. My story is a tiny part of a much bigger one, the story of God making and winning a people for himself, from the creation of the first quark, to the crisis of the cross, to the climax when everything is brought under the kingship of the Son (1 Cor 15: 22-28; Eph 1:3-10; Col 1:15-20).

So forget me being the author of my story. The real Author is far more skilled than I am. Forget me being the hero of my story. Jesus is front and centre on all its pages. Forget this being my story. It’s God’s story, and it’s moving towards the glory of his Son. We’re all caught up in a bigger story, you and I, and that’s exactly the way it should be.

This post first appeared at The Gospel Coalition Australia

Image: Manuscript of David Copperfield, © Victoria and Albert Museum, London.

Monday, May 30, 2016

three steps to living one day at a time

Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.” (Matthew 6:34)

I’ve spent a lot of my life worrying. Here’s how it works. My mind, unbidden, invents a number of possible futures. I figure out how to respond to each one: “If this happens, then ….” At some hidden level I’m convinced that if I imagine and prepare for enough scenarios, I won’t be surprised by whatever comes. I’ll be ready. Better than that, I’ll hold hardship at bay. Because how can the worst happen if you anticipate it? How can it happen if you prepare for it?

It sounds ridiculous when you put it into words. The future comes whether you anticipate it or not. If I imagine a hundred possible futures, at least 99 of them won’t come to pass. More likely, none of them will come to pass. Something else will happen, something quite unexpected. In the meantime, I will have wasted hours of mental energy (do you measure mental energy in hours?) trying to prepare for all kinds of events that never happen. Even prayer becomes a cover for playing over them in my mind, and working up enough strength to face them.

Three years ago I found out where this kind of mental activity will take you. Thought patterns are like exercise: perform a certain sequence of motions often enough, and your body grows accustomed to them until they become natural. In the same way, your mind gets better and better at thinking in a certain way, until it’s like a well-worn groove that your thoughts travel down.

So during a particularly stressful year, when our son was in the fourth year of his chronic illness and we still had no answers, I could no longer hold things together. Irrational fears flooded my thoughts. In some small and secret corner of my mind, I knew they were fabrications; but with the rest of my mind, I believed them absolutely. I lived on edge, at the point of panic, convinced that in the very next moment, my fears would knock on the door and walk straight in. It was one of the hardest years of my life, just behind the year my husband got cancer. Anyone who lives with high levels of anxiety will know how that’s possible.

The turning point came when I learned to stop listening to my fears (that sounds simple, but of course it wasn’t). I learned not to argue with my thoughts; not to chase down all the possibilities; not to try to come up with answers. I learned to say, “Yep, that’s interesting, another anxious thought. Another fear. But I choose not to listen. I choose not to engage.” I learned to give my fears to God rather than to steel myself to face them. I had to grit my teeth and do this over many months, but the fears gradually subsided. They still nudge at me when I am under stress. But I no longer pay attention, and these days they disappear relatively quickly.

That was the first step towards living one day at a time: learning not to listen to my fears. Here was the second step:

My husband got cancer. He nearly died. He had surgery, he had chemotherapy, and we entered the years-long waiting period we’re in now. You’d think this would be a time of fear. A time of monitoring every physical sign, anticipating the cancer’s return. And yes, there are moments like that, when my husband is unwell, and I wonder if this is it. But there was a moment, after months heavy with grief, when I sat on the steps leading down from our back veranda and pleaded with God, “Take this away. I am sick of feeling so awful. Please take these feelings away and give me some relief.” He heard my prayer.

I realised that I have a choice. I can live these months and years with my husband anticipating and fearing the worst; or I can live these months and years enjoying what we have right now. There’s no great moral superiority in choosing the second option. In some ways it’s not a choice at all; it’s a psychological necessity. More than that, it’s an answer to prayer. God and circumstances have taught me to leave the future in the future, and enjoy and thank him for the blessings of right now.

Ordinary life has become very precious to me. The many hours I spend in the car driving children back and forth, for example, that used to annoy me so much? Well, I won’t deny that they still exhaust me, but now they seem like a privilege. They are a privilege. This ordinary life, with these ordinary duties and these ordinary people in this ordinary house: this is a precious gift. It’s a pity it took my husband getting cancer to see it. But after facing the very real possibility of his death, just to live this life, with its repeated duties, seems to me to be an endlessly repeated blessing.

That was the second step towards living one day at a time: learning to be thankful for the blessings of each day. Here was the third:

I recently started a job as the part-time women’s worker at our church. It’s ministry I love, and with Steve’s health so precarious, I need to work in case I have to provide for our children one day. I’ve had busy school terms before – most of our terms are busy – but this term has been stuffed to bursting. Family responsibilities, home duties, hospital visits, a new job, challenging tasks that stretch me to the limit, one after another after another: the moment I let my mind slip into the future I feel overwhelmed by the coming demands, and the little time I have to prepare for them.

Most days there’s more than I can easily handle. I’m not strong enough for the duties of each day. I’m learning what it means to live each day in God’s enabling, with the grace he gives for the next task, the next hour, the next moment. Not to think about tomorrow (except if preparation and planning happens to be one of the duties of today), not to wonder how I am going to face it, but to trust that God will give me strength to do the tasks he gives me today, and tomorrow, and the next day, and the day after that, not now, not in advance, but as I come to each day.

That was the third step to learning to live one day at a time: learning to trust in God’s enabling for each day.

The other morning, weary after a night of little sleep, I parked the car on my way to work and sat for a few minutes under some peppercorn trees. These verses popped into my mind, a little jumbled and out of context, but speaking straight to my need:
Who is weak, and I do not feel weak? ... But we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us ... Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day … He said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me … For when I am weak, then I am strong. (2 Cor. 11:29; 4:7, 16; 12:9-10)
I am not strong enough to face today, let alone the next week, or the next month, or the next year. I am aware of that to my aching bones. But God is strong. He promises to give me what I need to keep trusting and serving him, moment by moment, day by day, whatever our circumstances. That’s how I face the future: not anticipating and preparing for every eventuality, but enjoying God’s gifts for today, and trusting him that, whatever he has in store, he will provide what I need to face it.

We live one day at a time, in God’s enabling.

This article first appeared at The Gospel Coalition Australia

Monday, February 29, 2016

Psalm 90: A walk with Moses

It all gets swept away. Or perhaps it’s that we are swept away, like pieces of bark on a river, unable to turn back, pressed against snags and stones. The banks slide by; one glimpse, and the things we pass are gone. And finally, the inevitable: worn down by time and decay, we fragment, break apart, particles mixing into the water like dust.

Fragile. Troubled. Uncertain. That is life. A wild flower scorched by the sun, blown by the wind, its blossom fallen and its beauty forgotten (Ps 103:15-16; Job 14:2; Jas 1:10-11). Grass that springs up new in the morning but by evening is dry and withered (Ps 90:5; Isa 40:6-7). A fleeting breath, an evening shadow that fades away (Ps 102:11, 109:23, 144:4; Job 7:7, 8:9, 14:1-2).

It’s not a comfortable thought. But it’s not one that I can avoid. We live with the possibility that my husband’s cancer may return. My son’s chronic ill health continues. There are changes in work and ministry. My mentor, the woman who helps me navigate these things, is moving away.

Have you ever experienced an earthquake? I have. Though perhaps it was a meteorite that shook the ground—I don’t remember now. What I do remember is the nightmarish sensation of the earth moving underfoot, as if it had turned from solid to liquid; the sense that something you took for granted, didn’t even notice, firm under your feet, could no longer be counted on.

I am standing on shifting ground. Loss and grief and change threaten, and there is nothing I can do to control them. I want to cling to the things and people I depend on, hold tight and not let go. But I am helpless to stop the inevitable, protect those I love, prevent them from leaving, keep them whole, preserve their lives, my life, even for a day.

So I open Psalm 90. I walk with Moses, this “man of God” who knew such great salvation and such deep sorrow. If anyone was familiar with the fragility of life, it was Moses, who watched a whole generation die in the desert. His words are bleak: our days, even the best of them, are full of trouble and sorrow; they quickly pass and we fly away, swept up in the sleep of death, turned back to dust; our years, seventy or eighty if we have the strength, finish with a moan.

Yet there is something that will never change, and it is there in the opening verse of the Psalm: God himself. He is “our dwelling place in all generations”. “From everlasting to everlasting” he is Lord. “A thousand years” in his sight “are but as yesterday when it is past”. Like Moses, we cry to him for mercy, help and salvation, for his love does not fail. He alone can establish the work of our hands.

Life is brief, full of loss and change. The people and things we depend on are fragile and fleeting. We can’t hold onto them. We can’t even direct our own path. But there is one thing that never alters, one thing we can count on, and that is God himself. He is from everlasting to everlasting. He is our strong and secure dwelling place. We take refuge in him.

Father, “teach us to number our days, that we may get a heart of wisdom” (Ps 90:12).

This post first appeared at GoThereFor.com.

Monday, October 12, 2015

life in God's waiting room

I’ve been thinking about waiting. The waiting you do when your hopes and dreams have been deferred—again. The waiting you do when you’re offered the opportunity you longed for but have to turn it down—again. The waiting you do when the future is uncertain and your plans can only be tentative and provisional—again.

Waiting, through twelve years of raising young children and five years of our son’s chronic illness, for a time when I can do more of the ministry I love outside the home. Waiting, through my husband’s cancer diagnosis, a six-week hospital stay and half a year of chemotherapy, to be washed up on the shores of not-quite-ordinary life again. Waiting, now, for his medical scans, the fork in the road; one path leading to further treatment, the other to four more years of waiting until we receive the all-clear.

Waiting for the waiting to be over.

So what do I do, here in life’s waiting room? Do I choose escapism? Do I complain and grow resentful? I do both, sometimes. But surely there are better uses of this time.

Here’s how I see it. There are two possible things going on here.

The first is that this isn’t so much a waiting room as God’s training-ground. A hothouse where I’m grown in Christlike character (Jas 1:2-4). A boot-camp to strengthen the muscles of perseverance, humility and hope (Rom 5:3-4; 1 Pet 5:6-11). God’s university, where he teaches me to mourn with those who mourn (Rom 12:15) and gives me the comfort that I will one day share with others (2 Cor 1:3-7), preparing me for life and ministry.

The second is that this isn’t a waiting room for life; it is life. These hardships may continue for many years. In which case, this isn’t preparation for anything more than the hard slog of patient endurance. And that’s okay. Because if I never get to do the ministries I long for, and just keep encouraging others by trusting God in hardship, that will be sufficient service for a lifetime.

Come to think of it, those aren’t alternatives. They are different perspectives, views of the same reality from opposite sides. Whatever God has in store, this is both training for life and life itself. This is the life God has given us. You don’t stop living just because you are waiting.

So what do I do, here in the waiting room?
  • I fulfil the duties of this time. I may not have chosen them—the doctors’ visits, the extra school trips, the weight of care—but this is the good work God has given me, and I try (and often fail!) to do it cheerfully, patiently and well. 
  • I make the most of the time we have together as a family to build strong relationships as a foundation for whatever may come (I’ve planned more family holidays and weekends with my husband this year). 
  • I train my own mind, and the hearts and minds of our children, to trust God during the trials we face now and the ones we may face in the future. 
  • I remember all those who have waited: for an affliction to end (Ps 27:14), a prayer to be answered (Ps 5:3), a ministry to begin (Exod 7:7), a hope to be fulfilled (1 Sam 1), and (this includes all of us) for Jesus to return (Rev 22:20). I am not alone. 
  • I put one foot in front of the other. Sometimes this means telling myself, “I know you feel lousy, but just do the next thing. It might make you feel a little better, and if it doesn’t, at least you will have finished one more task.” 
  • I pray the prayers of those who wait (e.g. Ps 130), bringing my fear, grief, disappointment and frustration to God, turning to him rather than away from him. 
  • I make plans that assume life will continue the way it is but that allow for uncertainty, then commit these plans into God’s hands (Jas 4:13-15). 
  • I manage my energy levels so I can keep serving: a good night’s sleep, regular exercise, a daily time of rest, and a weekly morning off to read an encouraging book, pray, and reflect on life. 
  • I live the ordinary Christian life wherever we are, from hospital to home (1 Pet 4:19). I read my Bible, pray for others, turn from sin, meet with God’s people, and try to use every opportunity to make Jesus known. 
  • I choose ministries that I can maintain, that use my limited time effectively to meet others’ needs, and that allow for interruptions. It helps if some of these ministries energize me so I can fulfil my primary ministry to our family. 
  • I learn the lessons that waiting teaches me: that we may plan, but God directs our steps (Prov 16:9); that the building of his kingdom doesn’t depend on our usefulness (Ps 127:1-2; 1 Cor 3:7-9); that his grace is sufficient for every day he gives us to face (2 Cor 12:9-10). 
  • I fight to choose contentment, thanksgiving, trust, and joy (1 Thess 5:16-18), remembering that God’s plans for me are better than any I could make for myself.
I don’t want to waste this time in the waiting room. I want to use it, every bit of it. Whether it turns out to be a waiting room or simply the life God has given us, I want to be able to look back and say: I did the work God gave me to do, in his strength and for his glory. And that is more honour than I deserve, and joy and privilege enough for me.

This article first appeared at GoThereFor.com.

Photo credit: Erich Ferdinand

Wednesday, April 22, 2015

contentment (1) at a time like this

A good friend of mine agreed to give talks on a woman’s conference. The topic? Contentment. A few weeks before the conference, she found out she might have breast cancer. She gave the talks anyway.

If you can’t talk about contentment at a time like this, when can you?

Five years ago, my son got sick. The doctor thought it was whooping cough. But instead of getting better, he started getting worse. He was home from school for weeks at a time, and then for months. He was finally diagnosed with chronic daily headaches and migraines complicated by chronic fatigue syndrome. He has learned to manage his condition, but he still suffers daily. His illness prompted me to add the topic of contentment to the teaching schedule for our women’s group.

If you can’t talk about contentment at a time like this, when can you?

Just over a year ago, my husband began to experience strange symptoms. He grew weaker and weaker. Medical tests came up blank. He started vomiting, became unable to keep any food down, and was hospitalised. We found out he had a rare small bowel cancer that couldn’t be picked up in the usual scans. Two months after major surgery and at the beginning of six months of chemotherapy, I was due to give a talk on contentment. I could have cancelled, but something told me there would never be a better time. ...

Read the rest at The Gospel Coalition Australia.

Monday, April 20, 2015

what I'm reading: suffering as vocation

"Suffering is a vocation, a calling from God."

Eight words on the first page of RC Sproul's Surprised by suffering, and I'm stopped in my tracks. I've never heard anyone say that before. I think it's a knowledge Christians lost somewhere along the way. Yet the awareness has been nudging at me for years, and it's good to hear someone say it.

Suffering. It's the calling no one wants. The gift no one asks for. "For it has been granted to you on behalf of Christ not only to believe in him, but also to suffer for him" (Phil 1:29). The word "granted" literally means "gifted". But who would want a gift like that?

You know what I thought my life would be like? What I saw as my vocation? How I thought I'd use my gifts? Marriage. Children. An active ministry to women.

Tick to the first two. But the last one has been put on hold more times then I can count. The year my youngest child went back to school, when many women edge their way back into work and ministry outside the home, my oldest son became chronically ill. I spent four years caring for him and, last year, for my husband who has cancer.

Do I resent this? Well, yes, sometimes, when I'm tempted to compare myself with others. But truly, no. My love for my husband and son has deepened. And like many who have suffered, I wouldn't swap what I have learned about God's love for anything. What I used to know in theory, I now know from experience: there really is nothing he will not give us grace to face.

But of course part of me asks: what happened to the life I planned?

Here's what happened: God had better plans for us. Harder and better ones. We run this race in the sight of others. And if we have to make Jesus known through our pain and our tears, then so be it. Because I would rather have this life with him than my carefully planned life without him.

Right now, we're called to the vocation of suffering. It's a high calling, and a hard one. It will drive you away from God, or drive you deeper into his love: there are only two ways about it. If we choose to turn to him, even when it hurts, he will never let us down or let us go.

I was going to tell you more about the book Surprised by Suffering, but my thoughts got stuck on the first page. I'll save the rest for another day. For the moment, this knowledge is enough:

"Suffering is a vocation, a calling from God."

Thursday, February 5, 2015

on the path to the cancer ward

There's a chemical smell that hits you on the way to the cancer centre. Some bright spark of an architect put the building's main vents just near the entrance doors. Every time you walk up the path, the smell of chemo hits you. Once you've been to an oncology ward, you don't forget that smell.

Every two weeks, we drive to Steve's appointment in heavy silence. We drag our feet up that path while I try not to breathe in. We sit in the chairs in the hallway; he stares into space while I fight back tears and fight down panic. A nurse calls his name, shows him to a chair: a green vinyl recliner, more suited to watching TV than to having poison pumped into your veins. We wait for the slow drip-drip! drip-drip! of the drugs.

The aim of Steve's chemo is curative. Or so they keep reminding us. I think it's to help us "stay positive". It doesn't help much. Doctors are relatively confident about colorectal tumours, and that's how they're treating Steve's small bowel cancer; but no one knows much about this rare disease.

Except God, of course. He knows every cell in Steve's body, and he is not at the mercy of statistics or uncertain prognoses or rare cancers. And so we fight to trust him.

And it has been a fight. Steve grieves the half-life he's forced to live. From days full of active ministry, to days lying on a couch, watching the cricket, and occasionally playing a game with the kids or getting some shopping or going for a slow walk down the street: it might sound like a holiday, but if so, this is no Hawaii.

The side-effects of chemo - nausea (controlled by steroids that give you sleepnessness instead of vomiting), numbing fatigue, brain-fog, peripheral neuropathy (tingling and numbness in fingers and toes), and a throat spasm that turned out to be a rare reaction to one of the chemicals - are hard to endure and hard to watch.

The last month has been easier for Steve. Two cycles ago they took him off one of the two main chemo drugs (he's still on the most important one) and the symptoms have reduced. He's past the worst of the chemo. Two more treatments, and that's the end for now. He is already easing his way back into work, and is coping well.

There will be further tests over the next few years to check if the cancer has returned. Waiting becomes our new normal, and we try to live as if we're not waiting. The kids go back to school, and I enjoy the space and silence. I begin to do more chores and start work on a talk. We plan a family holiday.

I've discovered that grief travels in three directions: past, present, and future. The trauma of what we've gone through; the struggle to accept our changed lives; fearful anticipation of what is to come. Sadness is like a backpack of rocks you carry around: you forget it for a while, stop and enjoy the view, but always it's there, and there are days when it feels too heavy to bear.

In the dark times, when I can't feel my way, I am often surprised by the strong light of God's word. Here's the passage that has lit my way recently:
Humble yourselves, therefore, under God’s mighty hand, that he may lift you up in due time. Cast all your anxiety on him because he cares for you.

Be alert and of sober mind. Your enemy the devil prowls around like a roaring lion looking for someone to devour. Resist him, standing firm in the faith, because you know that the family of believers throughout the world is undergoing the same kind of sufferings.

And the God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm and steadfast. To him be the power for ever and ever. Amen. (1 Peter 5:7-1)
Humble yourself under God's hand. Cast your fears on him. Resist Satan's attempts to undermine your faith. Remember you're not alone. Remember this is just for a little while. Remember God will lift you up and restore you and make you strong

To God be the glory. Amen.


If you'd like regular updates on how we're going, you can "like" this page on Facebook: Pray for Steve.

Sunday, October 19, 2014

my times are in your hands

"My times are in your hands" (Psalm 31:5) - two days in a row we received this verse in a card in the mail.

A wonderful reminder that it is God who ordains and numbers our days (Psalm 139:6; Job 14:5) - not, ultimately, illness or health professionals.

Jesus said, "Who of you by worrying can add a single hour to your life?" (Luke 12:25) - an encouragement against health anxiety.

Our times are in his hands.

Friday, October 3, 2014

how we're going

I have started and abandoned this post a few times now. I want to let you know how we are going - those of you who don't already know - but such a huge amount has happened since I wrote about Steve's diagnosis and surgery that it defies fitting into a blog post!

Here it is in miniature:

- 10 weeks ago my husband Steve was diagnosed with adenocarcinoma of the third and fourth sections of the duodenum (at the top end of the small bowel) after half a year of strange symptoms; it caused a blockage and he became unable to keep down solid food.

The tumour was removed successfully, for which we praise God (the surgeons were surprised at the success of the surgery). It was a stage 3 tumour - it had already spread to the lymph nodes - but there were no visible secondaries or spread to local organs, and the margins were clear.

- Steve spent a very long 5 1/2 weeks in hospital, and I spent much of that time with him while Mum cared for our 4 children at home.

They were strange weeks of shuffling walks down hospital corridors, wheeling him to a sunny courtyard every day (all the doctors say, "Sit in the sun while you recover from surgery"), sitting by Steve's bed while he suffered silently, getting him wet facecloths or blankets, reading the Bible to him and praying, or writing and looking out the window.

Hard days of diagnosis and grief, fear and surgery, tears and nausea; a terrible day when he had a septic shower (due to an infected haematoma) and I thought I would lose him; days of discouragement and slow, slow recovery.

- We have been home for 4 1/2 weeks now. You look forward to escaping hospital, so it's a bit of a shock to discover you have brought all the difficulties home with you. Of course, you knew this would happen, but it's hard all the same.

That said, it is wonderful for Steve to be home and for us to have him home. It has been slow, but his digestive system is gradually recovering from surgery. He can eat a little more, and we are learning to manage the issues caused by whipple-style digestive re-plumbing (for those in the know, he still has his pancreas and stomach, which makes it easier).

- He started chemotherapy - to mop up the remaining cancer cells in his system - 2 weeks ago. He had his second treatment this morning and it went fine. The treatments are in a beautiful new oncology room with a wall of windows looking out into the canopy of a huge oak tree.

He will have 12 treatments, God willing, every 2 weeks for 6 months. Already there have been unpleasant side effects, and they will increase over time. And so the next 6 months are going to be challenging.

The chemo will be followed by scans to check if the cancer has gone. I guess that will be a whole new stage of waiting, praying, hoping and trusting. We are planning a family holiday for after chemo if Steve is well enough.

- Many, many things have changed. Steve lost work, ministry and health. I lost ministry and have taken on the role of a carer to Steve as well as to our chronically ill son. We are at a different church now, just down the street from our house: our old church is too far to travel at the moment.

There is a lot of trauma and grief to process. My health hasn't been good due, I guess, to the stress, but I am beginning to recover. Our kids are doing okay and processing what has happened in their own ways.

It is the most beautiful Spring here in Melbourne. I go for walks and rejoice to see the new leaves of oaks and elms opening against the sky; sit by the lake nearby and listen to music or cry and pray.

We are learning a lot about endurance and persevering in faith, about turning and looking to Jesus, about trusting the Father's plans for our lives and seeking to glorify him. I love and live in the psalms more than ever (psalms 61-63 are my new favourites).

Steve and I are reading John Piper's tiny booklet Don't Waste Your Cancer together in the evenings. At one or two paragraphs a day, it's just about the right length! It's been very helpful and challenging.

We are upheld by many people's prayers, practical support and encouragement. If you have been praying, thank you so much!

And thanks too to our great God who loved us enough to give up his only Son to die for us, who understands suffering from the inside out, and whose love never fails.

For regular updates you can "like" this page on Facebook: Pray for Steve.

Monday, September 8, 2014

this is life now

The days are long and hard. It is not easy to be pulled out of your ordinary life - your work, your ministry, your taken-for-granted health - and put in the middle of every day, all day sickness, on top of the many demands of daily life, sadness, and fear for the future. There is so much loss and so many changes to adjust to, for all of us.

Yet there are also blessings. This beautiful Spring weather. The sunshine. Our love for each other. Those who care and pray for us. God's incredibly comforting word. The knowledge that our Father is in control and he is good. And Jesus, who has walked this path before us and for us.

Thank you for your prayers, friends. Please keep praying for hope and healing.

And if you want regular updates, you can find them at Pray for Steve

Wednesday, August 13, 2014

what's been happening

Hi all! You may remember I told you that Steve was sick during our bi-annual holiday. He continued to get worse after we got home. We found out two weeks ago that he has a rare cancer of the duodenum (upper small bowel).

Three weeks ago, he was admitted to hospital, and since then life has been a surreal procession of tests, waiting for results, and processing the kind of news no one wants to hear. Each piece of news was worse than the last – mass? lymphoma? adenocarcinoma? – until the day we got the good news that the scan showed no visible secondaries.

We grieved together, prayed together, wrote our wills, and told our children.

There have been many hard days: the days when we anxiously waited for results, the days we grieved the bad news, the days we began to think about what that will mean, the days I sat and watched Steve in pain and vomiting endlessly, and now, the slow days of recovery after surgery.

But the hardest day, for me, was the day of Steve’s operation.

The surgeons had no idea what they could do until they opened him up. They thought they would need to do a “whipple” – major surgery involving removal of part of the pancreas and stomach and complicated re-plumbing of the bowel. They feared they would have to do a bypass, leaving the tumour intact and rejoining the bowel around it.

I have never prayed so long and so hard in my life (I am ashamed to say that, but it’s true). I lay in bed – I had no energy to do anything else – and stared out at the rain, and prayed and prayed and prayed.

The surgeon rang at 1.24 pm with the news: they were able to do a duodectomy (removal of part of the duodenum) instead of the larger whipple. They removed the tumour successfully. There were no visible secondaries. I gave my children (all sick at home) a thumbs-up, and we gave thanks to God.

Now Steve is recovering from major surgery, which means nausea and weakness and mental disorientation and pain. I’ve spent most of the last three weeks by his bedside. My mother is looking after our kids, who are coping well – except for Andy, our eight-year-old, who misses his mum.

Already there has been loneliness (it is hard when the person you usually depend for comfort is so sick, at the very time when you need comfort most) and grief and fear. There have been times when I haven’t even wanted to talk to God, and other times when it has been hard to believe he loves us. I am living in the Psalms, and clinging to him as well as I can. Truly I can say that God is my refuge. “I sing in the shelter of his wings” (Psalm 63:7).

We await pathology and oncology and all the ongoing uncertainty that goes with a cancer diagnosis. Soon, we will begin to hear more about statistics and prognoses. I am praying for another 25 years with Steve. I am praying we will trust God whatever he wills for us. It is God who numbers our days, not statistics and prognoses. We are in his loving hands.

I feel afloat on an ocean of prayer. We are surrounded by people who support and help us. I have set up a Facebook page where I post daily prayer points. If you would like to pray with and for us, you can "like" this page: Pray for Steve.